Category: Massachusetts PD Support Groups

TRANSITIONS…GOOD? BAD? RIGHT TIME? RIGHT PLACE?

January 16, 2020 Comment

“Transitions” is defined this way: “passage from one state, stage, subject, or place to another”.

Exploring the phrase “passage from…one place to another” quickly emphasizes that when and how to make the decision to downsize a home and/or move into either assisted living or a nursing facility isn’t…or shouldn’t be…achieved in a single step. Consider the following information from Massachusetts-based 2Sisters Senior-living Consultants, as posted on their website under “frequently asked questions”:
https://2sisters-sla.com/resources/faq/

If making a decision about entering a nursing home, the following advisory will hopefully answer some questions and provide opportunities to attend seminars:

What are some of the most common mistakes to avoid when choosing a nursing home? 
Emily Rogue, LNHA, CDP, CSA – Nursing Home Specialist:

#1. Choosing a nursing home based on location alone.

Certainly, it’s beneficial to find a facility close to your support system, whether that means your adult children, friends, or community, so they can visit and be involved in your care. But that’s only one factor. Other important things to consider are therapy outcomes, inspection scores, and staffing ratios. Going to a nursing home is a big decision; the quality of care offered matters a great deal.

#2. Choosing a nursing home based on recent renovations.

It is tempting to choose the facility with the fancy new lobby chandelier and perfectly manicured front lawn. But even if a facility seems old and outdated, it is not necessarily a reflection of poor care — some nursing homes invest in important care factors, such as paying their staff higher wages. Pay attention to cleanliness (do the hallways and rooms appear clean and uncluttered?), culture (do people seem friendly and helpful?), smell (this could be an indicator of untimely care), and resident engagement (are there activities happening?).

#3. Waiting for the need to arise.

Most of the best nursing homes have wait lists. Hospital discharge can happen quickly, leaving families with little time to vet potential options. To avoid having to make a quick decision, begin familiarizing yourself with the options in your area now. Fill out a few applications and get on the wait lists for your top choices. Empower yourself to be an educated consumer and take charge of your healthcare!

Upcoming 2Sisters Events

Navigating Elder Care Without Losing Your Sanity — A Panel Discussion for Adult Children and Seniors
Thursday, January 23rd, 6:00 PM
Needham Council on Aging
300 Hillside Ave, Needham Heights, MA 02494

With Brenda Stewart, CSA, CDP, 2Sisters Senior Living Advisors; Roberta Hershorn, Realtor, Seniors Real Estate Specialist, Louise Condon Realty; Maana Hickson, Esq. Rubin Hay PC; Brett Goverman, CFP, Financial Solutions Associates

Navigating Elder Care Without Losing Your Sanity — A Panel Discussion for Adult Children and Seniors
Thursday, February 6th, 6:45 PM
Sharon Community Center
219 Massapoag Ave, Sharon, MA 02067

With Brenda Stewart, CSA, CDP, 2Sisters Senior Living Advisors; Roberta Hershorn, Realtor, Louise Condon Realty, Seniors Real Estate Specialist; Linda K. Fisher, Esq. JD, MBA, LLM Taxation, Fisher Law

Navigating Elder Care Without Losing Your Sanity — A Panel Discussion for Adult Children and Seniors
Tuesday, March 10th, 6:00 PM
Dedham Library
43 Church St, Dedham, MA 02026

With Brenda Stewart, CSA, CDP, 2Sisters Senior Living Advisors; Roberta Hershorn, Realtor, Seniors Real Estate Specialist, Louise Condon Realty; Maria Baler, Esq., Samuel, Sayward & Baler, LLC; Brett Goverman, CFP, Financial Solutions Associates

How Not to Choose a Nursing Home
Tuesday, March 10th, 10:00 AM
Watertown Council on Aging
31 Marshall Street, Watertown, MA 02472

Join Emily Rogue, LNHA, CDP, CSA, 2Sisters Nursing Home Specialist, as she reveals the five most common mistakes people make when choosing a nursing home and offers guidance for making wise decisions instead.

 

 

 

 

DO I TELL THE BOSS ABOUT MY PARKINSON’S DIAGNOSIS?

June 18, 2017 Comment

A growing number of younger people are being diagnosed with early-onset Parkinson’s. Many men and women are still actively working and wondering about having “the talk” with an employer about the future. Advice found in the web site link below is particularly important, as is educating oneself about workplace rights under the American with Disabilities Act:

“Give yourself time to absorb the news, and take some time to educate yourself about Parkinson’s disease and how it will progress over time. …you don’t want to talk to your boss about Parkinson’s if you yourself know very little about the disorder and can’t answer questions.” 

“The Americans with Disabilities Act (ADA; www.ada.gov), which is enforced by the Equal Employment Opportunity Commission, prohibits workplace discrimination due to disability as long as you can demonstrate that you can perform the job in question when reasonable adjustments are made to accommodate you.” 

Click on the link to read excellent “talking points” for holding open, honest discussion with an employer, human resources staff, and fellow employees.

https://www.verywell.com/parkinsons-disease-work-concerns-2612115?utm_term=parkinsons+latest+news&utm_content=p4-main-1-title&utm_medium=sem-sub&utm_source=msn_s&utm_campaign=adid-a6f6bdc6-6c5d-4114-92c5-6582778901ca-0-ab_msb_ocode-29655&ad=semD&an=msn_s&am=broad&q=parkinsons+latest+news&o=29655&qsrc=998&l=sem&askid=a6f6bdc6-6c5d-4114-92c5-6582778901ca-0-ab_msb

Young (“early”) Onset Parkinson’s support group information is available by contacting the American Parkinson Disease Association Massachusetts Chapter’s Information & Referral Service located in Boston (http://apdama.org/wcms/about-us/information-referral-center/)