Category: Caregiving

CAN ZEBRA FISH HELP YOU SLEEP??

Zebra Fish

Excerpting from a June 19, 2019 Parkinson’s News Today article by Catarina Silva: According to a study of zebra fish, not getting enough sleep may cause memory defects and emotional changes due to changes in dopamine metabolism. (Sleep Deprivation Caused Memory Defects and Emotional Changes in a Rotenone-based Zebra fish Model of Parkinson’s Disease”, published in Behavioural Brain Research.)

Researchers wrote: “In addition to cognitive and emotional disorders, sleep abnormalities are also prevalent in Parkinson’s disease. The problem of sleep is not only the characteristics of the disease itself, but also related to medication and dyskinesia such as tremor and rigidity.”

Sleep is an essential physiological process, and lack or shortage of sleep time causes fatigue, increase of mood swings, and can affect learning and memory. Some studies have shown that sleep deprivation can result in emotional and cognitive impairments.

A team of Chinese researchers investigated the effects of sleep deprivation on locomotor activity, memory and emotional behavior in a zebrafish model of Parkinson’s disease. To understand how tiny fish are helping with research for a cure, read more here

WORRIER OR WARRIOR..DO YOU HAVE A CHOICE?

Sherri Woodbridge was diagnosed with Young Onset Parkinson’s disease over fifteen years ago.
Her column, “Journeying Through Parkinson’s Disease” appears regularly on the Parkinson’s News Today website (click here), and we often share her first-hand wisdom in our own blog updates.

Sherri can be found working in her garden, going for walks, taking pictures, or reading books to her three favorite grandkids. Taking life somewhat slower, and perhaps with guarded steps, but she’s not giving in…a warrior role model who “gets it”!

FACT-FINDING AT A LIBRARY WHERE YOU DON’T NEED A CARD!

New Fact Sheets Are Available!

The Parkinson’s Foundation has a free library with the latest Parkinson’s disease (PD) related information. To view the following topics and many more – Seeking a Specialist, Physical Therapy, Depression, Intimacy, Impulse Control, Non-drug options, Anxiety, Fatigue or Apathy – click here.

I’M TRYING TO TALK AS LOUD AS I CAN!

Free App Available for Improving Speech Volume
and Clarity!

Being able to communicate effectively obviously affects everyday life quality. Parkinson’s symptoms can include a noticeable drop in speech volume, as well as an effect on the way in which one speaks. (dysarthria: when the muscles in the lips, tongue, vocal cords, and diaphragm do not work together to help one speak clearly – often causing words to run into one another and not be distinctly recognized.)

There is a FREE program available for use at home on an iPad that can help with improving speech volume and clarity! Please note that an iPad iOS 7 or greater is required for this application. Read more here!


REMEMBER BEING TOLD TO STAND UP STRAIGHT? SO WHAT IS FTF?

“Poor posture is a hallmark feature of Parkinson’s disease. This stooped positioning has been associated with increased muscle rigidity or stiffness. The typical Parkinson’s posture includes: forward head, rounded shoulders, increased thoracic kyphosis, increased flexion of the trunk, and bending of the knees.”

How can poor posture affect you?

  • Difficulty speaking clearly and loudly
  • Difficulty with moving your neck and upper extremities
  • Change your perception of your body’s position in space
  • Can alter balance and lead to falls from having your weight shifted forward
  • Decrease strength of postural muscles
  • Headaches and TMJ pain
  • Difficulty swallowing

(Meredith Defranco, “Parkinson’s Treatment Tips” published March 1, 2012, Norman Fixel Institute for Neurological Diseases at University of Florida Health)

A May 22, 2019 article in Parkinson’s News Today offers insight into assessment results from a controlled study that utilized a four-week trunk-specific, posture-correcting rehabilitation program: “Forward bending of the spine, known as disease-related forward trunk flexion (FTF), is a common complication observed in patients with Parkinson’s disease. FTF can result in permanent postural imbalance, pain, frequent falls, and irreversible deformities. Early detection and rehabilitation efforts through focused physical therapy can help in reducing pain and delay motor symptoms progression. However, information is limited on FTF rehabilitative efforts in Parkinson’s patients.” – Vijaya Iyer Read more here

MAKE WATER YOUR #1 BEVERAGE OF CHOICE!

When we lose more water than we take in, dehydration sets in. And too many of us just don’t think much about how serious dehydration can become. Why not drink some water RIGHT NOW while clicking here to read some very important facts about the risks of dehydration on our bodies and abilities to think and respond clearly and safely.

MAKE YOUR DENTIST PART OF YOUR MEDICAL TEAM…

The August/September issue of Brain & Life magazine offers an important article about dentist visits for people with neurologic conditions. For this and a great variety of other articles, click on the following link: https://www.brainandlife.org/the-magazine/article/app/14/4/23/dental-visits-made-easier-for-many-people-with-neurologic-conditions

For instance, when scheduling dental visits, time appointments for when medications are the most effective. Because Parkinson’s is progressive, consider replacing old fillings, crowns and bridges during the early stages following diagnosis. Being proactive in managing life care should include telling the dentist if you are taking monoamine oxidase B inhibitors such as rasagiline (Azilect) and selegiline (Emsam) drugs used to treat symptoms such as fatigue, because they can interact with anesthesia and cause adverse reactions.

Brushing and flossing twice a day and avoiding decay-producing foods helps prevent pain, tooth loss, infections, and in extreme cases, death due to abscesses if ignored too long. Hard to hold onto a toothbrush? Try this: make a small slit in a tennis ball and slide the toothbrush handle into it. The ball provides a larger hand grip that many people need, which may encourage more frequent brushing!

HAND TREMORS? THEY’RE NOT NECESSARILY PARKINSON’S RELATED…

Let’s say you’ve noticed recently that your hands have developed an unexplained tremor. You may start prematurely worrying and begin asking yourself or others, “Could I have Parkinson’s disease?” For some, the answer may be yes and should be addressed by a doctor. But for others, hand tremor can be caused by medications prescribed for conditions completely unrelated to Parkinson’s.

An August 9th medical article by Dr. Sharon Orrange, an Associate Professor of Clinical Medicine in the Division of Geriatric, Hospitalist and General Internal Medicine at the Keck School of Medicine of USC, provides this insight about how drug-induced tremors differ from Parkinson’s symptoms.

(https://www.goodrx.com/blog/10-medications-that-cause-shaky-hands-and-how-to-know-its-not-parkinsons/)

STRATEGIZING THEORY FOR THE WAR AGAINST PARKINSON’S…

“Strategy without execution
is the slowest route to victory,
and tactics without strategy
is the noise before defeat.”
―Sun Tzu

Sun Tzu was a Chinese general, military strategist, writer, and philosopher who lived in the Eastern Zhou period of ancient China. Sun Tzu is traditionally credited as the author of The Art of War, a widely influential work of military strategy that has affected both Western and East Asian philosophy and military thinking.

When your strategy for holding Parkinson’s symptoms at bay is – “I’ll plan for exercise, education, and socialization with others to manage my Parkinson’s” – but then none of it is put into action, Parkinson’s gains another life-robbing victory in the war.

The Parkinson’s Fitness team is here to provide BOTH the strategies and the ways to execute them that fit YOUR abilities! We have a whole variety of classes and programs that address the many challenges Parkinson’s symptoms create. TRY ANY OR ALL OF THEM! Click here for days, times and locations.

 

“SILENT” 9-1-1 EMERGENCY CALL PROCEDURE


The “Silent Call” procedure is a unique program in the Massachusetts Enhanced 9-1-1 system that allows a caller who is unable to verbally communicate their emergency over the phone to receive the appropriate response.

If you need to call 9-1-1 and you are unable to speak for any reason, such as a physical disability, domestic violence or home invasion, follow these simple steps using a touch-tone wired telephone or a cell phone:

DIAL 9-1-1 – Once the call is answered:

     POLICEpress 1        FIREpress 2        AMBULANCE – press 3

 

The 9-1-1 dispatcher may ask questions that require a “yes” or “no” answer.
     YESpress 4             NO – press 5

 

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