An October 30, 2018 article posted on the Parkinson’s News Today web site states:
“Although a high percentage (27% to 80%) of Parkinson’s patients experience lower urinary tract problems, little is known about effective treatments. Urinary symptoms such as urgency, frequency, nocturia (excessive urination at night), dysuria (pain or discomfort when urinating), and incontinence are indicative of an overactive bladder and can affect patients’ quality of life considerably.”
If urinary symptoms are bothersome enough that you want to know more about what the medical experts are learning and perhaps recommending, read here for the complete and very interesting article provided at Parkinson’s News Today.
Learn more here about neurogenic bladder conditions from information sited on the Cleveland Clinic website.
NOTE: The information shared on our Parkinson’s Fitness site is intended for general educational use to assist readers in becoming informed participants in a personal medical management plan. Presenting the information does not imply endorsement or recommendation of them as medical diagnosis, treatment, advice, or as a replacement for consultation with a qualified medical professional. We attempt to be as consistently accurate as possible; however, conveyed information from other sources should not be relied upon as being comprehensive or error-free.
There was intention in our theme for this year’s September 14th symposium, and for those who attended (and for those who couldn’t but have read or heard about the event), we wanted to instill the importance of building and maintaining resilience to Parkinson’s challenges.
Coincidentally, in this week’s Parkinson’s News Today, columnist Sherri Woodbridge (diagnosed with young-onset Parkinson’s over 15 years ago) focused her subject material with a similar emphasis.
Click here to read her latest reflections about giving up not being an option, and her reminder about seeking purpose…NO MATTER WHAT!
Left to right: Melanie Giles, Marie Lucey, Dr. Stephanie Bissonnette, Linda Hall (Parkinson’s Fitness co-founder), Anne Muskopf, Stephanie Recchia
With location hosting once again provided by the Danvers Community YMCA and their friendly, helpful staff and volunteers – with additional event assistance from YMCA Outreach Director Suzanne Malach – all was in readiness on September 14th for welcoming the 123-plus audience participants, 5 speakers, and 16 education exhibitors, to our “Living Well with Parkinson’s: Building Resilience Foundations” symposium!
Five engaging guest speakers offered guidance about how to live stronger and create and maintain enjoyable, safe ways of everyday living.
Geriatric Medical Social Worker and keynote speaker, Stephanie Recchia, described resilience in terms related to searching within and beyond one’s self and discovering how past experiences and even personality traits affect adaptability to living with life-changing prolonged illness. She stressed the need for creating an interdisciplinary medical team, as well as strong family and peer support. Stephanie’s insightful remarks transitioned into how to re-create (or start) building strong inner foundations that help promote experiences of happiness and productivity.
Dr. Stephanie Bissonnette from the Boston Medical Center and BU School of Medicine focused on neurology. Marie Lucey from the Center for Balance, Mobility and Wellness at Gordon College addressed the importance of physical therapy. Melanie Olson Giles from the Speech Therapy Group in Beverly spoke about maintaining strong vocal communication capabilities and safe swallowing therapies. Anne Muscopf from the Jewish Family & Children’s Service Parkinson’s Family Support Program presented ways of creating activities of everyday lifestyle adaptations, as well as the potential use of assistive devices when necessary.
Parkinson’s Fitness instructors:
left: Dianna Daly, Balance in Motion
right: Kim Crowley, Strength & Conditioning
Once again, Parkinson’s Fitness instructors Dianna Daly (Balance in Motion) and Kim Crowley (Strength & Conditioning), joined by class substitute Sally Zagnoli, had EVERYONE moving and stretching to the lively music they’d chosen to showcase how even five minutes of movement a day can “wake up” anyone’s body! Click here to read more about our instructors and again here for weekly class locations and times in six nearby communities.
We couldn’t provide these educational symposiums without the support of our generous sponsors, participation by willing and wonderful speakers and their, as well as other, dedicated organizations who are helping to create the best possible life-management and healthy-living programs for all who live with Parkinson’s.
Ending with the words of online Parkinson’s News Today columnist and fellow Parkinsonian, Sherri Woodbridge, author of Journeying through Parkinson’sDisease:
“…Hope brings purpose back into view. It shuts out the “what-ifs” and turns down the dial of doubt. It disables the feelings of despair, enables you to have a confident expectation of a cure, finds the blessings in the curse, and faith for a brighter future.”
If you’re old enough, you may remember the catchy rhythm in Frank Sinatra’s daughter Nancy’s recording of These Boots Are Made For Walkin’. We’ve used that song in some of our exercise classes to showcase how humming or singing while practicing certain movements can actually improve the effort being made. Music can reach parts of the brain that control how the body responds to rhythm and actually improve not only speech volume, swallowing and breath control, but also unsteadying gait challenges caused by Parkinson’s.
Read more from this interesting article posted on line by Parkinson’s News Today. Then, see if you remember these lyrics and apply them to the fight against Parkinson’s: “These boots are made for walkin’ and that’s just what they’ll do. One of these days, these boots are gonna walk all over YOU.”
Surgeries requiring general anesthesia pose complicated risks for anyone. For people with neurologic disorders such as Parkinson’s, the potential risk of postoperative issues rises. Fortunately – while understandably unsettling to read certain medical information – it is far more important to have as much prior education as possible about the side effects of general anesthesia should surgery and hospitalization afterward become necessary.
We encourage you to read, save and share the important information about undergoing general anesthesia presented in this article from the August/September issue of Brain and Life Magazine. This is a subject that should be discussed with your medical team: general practitioner, surgeon, and neurologist. Click here for the full article
“Healthcare providers say that hallmark signs of nOH, including dizziness, lightheadedness, blurred vision, and feeling faint after standing, can occur at any stage of Parkinson’s disease. People may believe that their nOH symptoms are part of their Parkinson’s and something they have to learn to live with. It’s only once a healthcare provider connects the symptoms of being lightheaded or faint after standing to a drop in blood pressure that an nOH diagnosis may be possible.”(https://www.nohmatters.com/how-neurogenic-orthostatic-hypotension-occurs/parkinsons-dizzy)
Keith and Linda Hall’s lives are affected by Keith’s nOH symptoms. Read here about what’s happened to them and what steps they’ve taken to live with a difficult but manageable diagnosis.
Lifestyle changes for Keith and others include:*
Drinking more water
Adjusting the amount of salt in your diet
Avoiding carbohydrate-heavy meals, caffeine, and alcohol
Wearing compression stockings or an abdominal binder
Elevating the head of your bed
Slowly rising when standing
Using caution when walking or changing positions if you feel dizzy
Getting regular exercise (*Ask your healthcare provider for guidelines and advice on lifestyle modifications that would work best for you.)
“Communication, is not a singular process, and a spouse or other significant other often has to be invited into a treatment visit to help them better understand how their own communication style or behaviors may support or limit the progress of their loved ones. …Having a diagnosis of Parkinson’s disease or a related diagnosis can sometimes take a toll on relationships. …If speech and hearing problems are not addressed, talking to one’s spouse, which may have been a pleasurable and emotionally fulfilling part of a couple’s relationship, may gradually disappear and become another burden associated with the disease.” –Mary Spremulli, MA, CCC-SLP
Read more here from Voice Aerobics about communication and swallowing disorders. “Licensed speech-language pathologists and audiologists are eager to help people communicate effectively across the lifespan. Take advantage of their help!” Mary Spremulli
Sherri Woodbridge was diagnosed with Young Onset Parkinson’s disease over fifteen years ago. Her column, “Journeying Through Parkinson’s Disease” appears regularly on the Parkinson’s News Today website (click here), and we often share her first-hand wisdom in our own blog updates.
Sherri can be found working in her garden, going for walks, taking pictures, or reading books to her three favorite grandkids. Taking life somewhat slower, and perhaps with guarded steps, but she’s not giving in…a warrior role model who “gets it”!
The Parkinson’s Foundation has a free library with the latest Parkinson’s disease (PD) related information. To view the following topics and many more – Seeking a Specialist, Physical Therapy, Depression, Intimacy, Impulse Control, Non-drug options, Anxiety, Fatigue or Apathy – click here.
Being able to communicate effectively obviously affects everyday life quality. Parkinson’s symptoms can include a noticeable drop in speech volume, as well as an effect on the way in which one speaks. (dysarthria: when the muscles in the lips, tongue, vocal cords, and diaphragm do not work together to help one speak clearly – often causing words to run into one another and not be distinctly recognized.)
There is a FREE program available for use at home on an iPad that can help with improving speech volume and clarity! Please note that an iPad iOS 7 or greater is required for this application. Read more here!
The materials contained on our site are intended for general educational use to assist readers in becoming informed participants in a personal medical management plan. Presenting the information does not imply endorsement or recommendation of them as medical diagnosis, treatment, advice, or as a replacement for consultation with a qualified medical professional. We attempt to be as consistently accurate as possible; however, conveyed information from other sources should not be relied upon as being comprehensive or error-free.