“Communication, is not a singular process, and a spouse or other significant other often has to be invited into a treatment visit to help them better understand how their own communication style or behaviors may support or limit the progress of their loved ones. …Having a diagnosis of Parkinson’s disease or a related diagnosis can sometimes take a toll on relationships. …If speech and hearing problems are not addressed, talking to one’s spouse, which may have been a pleasurable and emotionally fulfilling part of a couple’s relationship, may gradually disappear and become another burden associated with the disease.” –Mary Spremulli, MA, CCC-SLP
Read more here from Voice Aerobics about communication and swallowing disorders. “Licensed speech-language pathologists and audiologists are eager to help people communicate effectively across the lifespan. Take advantage of their help!” Mary Spremulli
Excerpting from a June 19, 2019 Parkinson’s News Today article by Catarina Silva: According to a study of zebra fish, not getting enough sleep may cause memory defects and emotional changes due to changes in dopamine metabolism. (Sleep Deprivation Caused Memory Defects and Emotional Changes in a Rotenone-based Zebra fish Model of Parkinson’s Disease”, published in Behavioural Brain Research.)
Researchers wrote: “In addition tocognitive and emotional disorders, sleep abnormalities are also prevalent in Parkinson’s disease. The problem of sleep is not only the characteristics of the disease itself, but also related to medication and dyskinesia such as tremor and rigidity.”
Sleep is an essential physiological process, and lack or shortage of sleep time causes fatigue, increase of mood swings, and can affect learning and memory. Some studies have shown that sleep deprivation can result in emotional and cognitive impairments.
A team of Chinese researchers investigated the effects of sleep deprivation on locomotor activity, memory and emotional behavior in a zebrafish model of Parkinson’s disease. To understand how tiny fish are helping with research for a cure, read more here
Sherri Woodbridge was diagnosed with Young Onset Parkinson’s disease over fifteen years ago. Her column, “Journeying Through Parkinson’s Disease” appears regularly on the Parkinson’s News Today website (click here), and we often share her first-hand wisdom in our own blog updates.
Sherri can be found working in her garden, going for walks, taking pictures, or reading books to her three favorite grandkids. Taking life somewhat slower, and perhaps with guarded steps, but she’s not giving in…a warrior role model who “gets it”!
The Parkinson’s Foundation has a free library with the latest Parkinson’s disease (PD) related information. To view the following topics and many more – Seeking a Specialist, Physical Therapy, Depression, Intimacy, Impulse Control, Non-drug options, Anxiety, Fatigue or Apathy – click here.
Being able to communicate effectively obviously affects everyday life quality. Parkinson’s symptoms can include a noticeable drop in speech volume, as well as an effect on the way in which one speaks. (dysarthria: when the muscles in the lips, tongue, vocal cords, and diaphragm do not work together to help one speak clearly – often causing words to run into one another and not be distinctly recognized.)
There is a FREE program available for use at home on an iPad that can help with improving speech volume and clarity! Please note that an iPad iOS 7 or greater is required for this application. Read more here!
“Poor posture is a hallmark feature of Parkinson’s disease. This stooped positioning has been associated with increased muscle rigidity or stiffness. The typical Parkinson’s posture includes: forward head, rounded shoulders, increased thoracic kyphosis, increased flexion of the trunk, and bending of the knees.”
How can poor posture affect you?
Difficulty speaking clearly and loudly
Difficulty with moving your neck and upper extremities
Change your perception of your body’s position in space
Can alter balance and lead to falls from having your weight shifted forward
Decrease strength of postural muscles
Headaches and TMJ pain
(Meredith Defranco, “Parkinson’s Treatment Tips” published March 1, 2012, Norman Fixel Institute for Neurological Diseases at University of Florida Health)
A May 22, 2019 article in Parkinson’s News Today offers insight into assessment results from a controlled study that utilized a four-week trunk-specific, posture-correcting rehabilitation program: “Forward bending of the spine, known as disease-related forward trunk flexion (FTF), is a common complication observed in patients with Parkinson’s disease. FTF can result in permanent postural imbalance, pain, frequent falls, and irreversible deformities. Early detection and rehabilitation efforts through focused physical therapy can help in reducing pain and delay motor symptoms progression. However, information is limited on FTF rehabilitative efforts in Parkinson’s patients.” – Vijaya IyerRead more here
If you can relate to others who experience episodes of having your feet “freeze” in place while you’re on your way elsewhere, you likely also have postural instability, meaning your balance is impaired. Quoting from an online article from the Parkinson Foundation, “…these symptoms can cause falling, resulting in a multitude of injuries, a loss of personal freedom, caregiver stress and a reduction in the quality of life (Pirker & Katzenschlager, 2017; Samotus, Parrent, & Jog, 2018). …Current PD medications, therapies or surgical procedures do not effectively address this debilitating unmet need. This lack of options might be changing, due to an intervention called spinal cord stimulation (SCS).”
Information contained in the study is so worth reading and discussing with your movement specialist or neurologist. Don’t pass this by! The results of this study may provide a new gateway to a new “gait way”! READ MORE HERE
Quoting information provided in a Michael J. Fox Foundation Foxfeed blog post titled “Ask the MD: Music as Medicine for the Mind”…
“In certain diseases, like Parkinson’s, the brain rhythm in the circuit controlling movement gets off track. …Playing music exercises the mind and body. It provides a route for social interaction. In drawing someone into its rhythm, it can calm a resting tremor, break a freezing spell and bring gait into a more normal pattern. Music can boost memory, lessen depression, and improve the volume and tone of speech.” (https://www.michaeljfox.org/foundation/news-detail.php?music-as-medicine-for-the-mind)
Join our new MedRhythms 8-week neurologic percussion series beginning on Wednesday afternoons from 1-2 PM at the Danvers Community YMCA starting May 1st! Beat a combination of drums, smack a boomwacker, shake maracas…and SO much more! The series is limited to 30 people – take a chance on something new, motivating, beneficial, and fun. Register early by emailing firstname.lastname@example.org to be part of this pilot opportunity here in our area!
A recent post by the Parkinson’s Foundation explains the risks of using marijuana by people with Parkinson’s. Watch this 4-minute video narrated by Parkinson’s Foundation Chief Scientific Officer, James Beck.
Parkinson’s Fitness is not advocating the use of marijuana. Instead, as always, we provide information that readers should discuss in depth with their team of specialists, and then make choices that are safe, healthy, and correct for their particular challenges with this multi-faceted condition.
Michael Braitsch, a kinesiology professor and board-licensed doctor of physical therapy, states that:
“Parkinson’s motor symptoms mimic normal aging in many ways — only they’re sped up and intensified. Because each patient experiences Parkinson’s uniquely, tailored and one-on-one routines are best. Still, he said, group programs with skilled leaders are also worthwhile, fostering consistency, motivation, performance, community, camaraderie, support and idea sharing.
“Depression and isolation starts a negative feedback loop. So, that’s where a tribe helps,” said Braitsch. …Strength in numbers means we all do better together.”
In a GREAT online post from Parkinson’s News Today, the gist of the entire article mirrors what our Parkinson’s Fitness philosophy has stated and reinforced since we began in 2013! We encourage you to click this link and read the article. You will find many similarities to what we consistently emphasize and encourage! Click below for the article:
The materials contained on our site are intended for general educational use to assist readers in becoming informed participants in a personal medical management plan. Presenting the information does not imply endorsement or recommendation of them as medical diagnosis, treatment, advice, or as a replacement for consultation with a qualified medical professional. We attempt to be as consistently accurate as possible; however, conveyed information from other sources should not be relied upon as being comprehensive or error-free.