Parkinson’s Fitness husband and wife co-founders, Keith and Linda Hall, will be on the sidelines at the Team Fox New York City Marathon as their son, Max, runs his first grueling race of this duration!
Max’s story and how you can still make a supportive donation can be read here.
WAY TO GO, MAX!
The national Parkinson’s Foundation offers an outstanding patient safety Aware in Care emergency kit that every person and family affected by Parkinson’s should have. The kit includes tools and information that will help people with Parkinson’s and their families have readily available when the unexpected – or even planned – happens!
Read more here about the kit and how to order one – FREE OF CHARGE!
An October 30, 2018 article posted on the Parkinson’s News Today web site states:
“Although a high percentage (27% to 80%) of Parkinson’s patients experience lower urinary tract problems, little is known about effective treatments. Urinary symptoms such as urgency, frequency, nocturia (excessive urination at night), dysuria (pain or discomfort when urinating), and incontinence are indicative of an overactive bladder and can affect patients’ quality of life considerably.”
If urinary symptoms are bothersome enough that you want to know more about what the medical experts are learning and perhaps recommending, read here for the complete and very interesting article provided at Parkinson’s News Today.
Learn more here about neurogenic bladder conditions from information sited on the Cleveland Clinic website.
NOTE: The information shared on our Parkinson’s Fitness site is intended for general educational use to assist readers in becoming informed participants in a personal medical management plan. Presenting the information does not imply endorsement or recommendation of them as medical diagnosis, treatment, advice, or as a replacement for consultation with a qualified medical professional. We attempt to be as consistently accurate as possible; however, conveyed information from other sources should not be relied upon as being comprehensive or error-free.
If you have a family member or know someone with bi-polar disorder, studies show that the chances of their developing Parkinson’s disease increases!
Quoting from a recent article in Parkinson’s News Today: “Data from seven studies, involving 4, 374, 211 total participants, were used. The selected studies contained data on the likelihood of developing Parkinson’s disease in individuals with bipolar disorder versus those who did not have this condition.”
Read the full text of the October 17th article titled “People With Bipolar Disorder Face Higher Risk of Later Developing Parkinson’s, Study Finds”
Almost everyone has heard about the importance of getting enough vitamin D to maintain good bone density and strength. One side of the health coin suggests spending time outside absorbing direct sunshine, while the other side warns about too much exposure and the very real concern of developing skin cancer. When blood tests reveal low vitamin D levels, physicians often prescribe vitamin D in pill form.
Quoting from an article released in the August 2019 Parkinson’s News Today:
“Some studies support that lack of vitamin D results in a greater risk of falls and fractures in Parkinson’s patients, which can increase hospitalization and even fatal disability. Its levels also have been associated with cognition and mood, as well as stomach malfunction in people with the disease. …People with lower vitamin D levels were more likely to fall and experience sleep problems, including difficulty in falling asleep (insomnia). They also had significantly more depression and anxiety.”
Read more here about the effect of low vitamin D levels on Parkinson’s non-motor symptoms. Discussions with one’s doctor, including requests for blood tests to monitor vitamin D levels, are another potential add-on life-management tool.
There was intention in our theme for this year’s September 14th symposium, and for those who attended (and for those who couldn’t but have read or heard about the event), we wanted to instill the importance of building and maintaining resilience to Parkinson’s challenges.
Coincidentally, in this week’s Parkinson’s News Today, columnist Sherri Woodbridge (diagnosed with young-onset Parkinson’s over 15 years ago) focused her subject material with a similar emphasis.
Click here to read her latest reflections about giving up not being an option, and her reminder about seeking purpose…NO MATTER WHAT!
Left to right:
Melanie Giles, Marie Lucey, Dr. Stephanie Bissonnette, Linda Hall (Parkinson’s Fitness co-founder), Anne Muskopf, Stephanie Recchia
With location hosting once again provided by the Danvers Community YMCA and their friendly, helpful staff and volunteers – with additional event assistance from YMCA Outreach Director Suzanne Malach – all was in readiness on September 14th for welcoming the 123-plus audience participants, 5 speakers, and 16 education exhibitors, to our “Living Well with Parkinson’s: Building Resilience Foundations” symposium!
Five engaging guest speakers offered guidance about how to live stronger and create and maintain enjoyable, safe ways of everyday living.
Geriatric Medical Social Worker and keynote speaker, Stephanie Recchia, described resilience in terms related to searching within and beyond one’s self and discovering how past experiences and even personality traits affect adaptability to living with life-changing prolonged illness. She stressed the need for creating an interdisciplinary medical team, as well as strong family and peer support. Stephanie’s insightful remarks transitioned into how to re-create (or start) building strong inner foundations that help promote experiences of happiness and productivity.
Dr. Stephanie Bissonnette from the Boston Medical Center and BU School of Medicine focused on neurology. Marie Lucey from the Center for Balance, Mobility and Wellness at Gordon College addressed the importance of physical therapy. Melanie Olson Giles from the Speech Therapy Group in Beverly spoke about maintaining strong vocal communication capabilities and safe swallowing therapies. Anne Muscopf from the Jewish Family & Children’s Service Parkinson’s Family Support Program presented ways of creating activities of everyday lifestyle adaptations, as well as the potential use of assistive devices when necessary.
Parkinson’s Fitness instructors:
left: Dianna Daly, Balance in Motion
right: Kim Crowley, Strength & Conditioning
Once again, Parkinson’s Fitness instructors Dianna Daly (Balance in Motion) and Kim Crowley (Strength & Conditioning), joined by class substitute Sally Zagnoli, had EVERYONE moving and stretching to the lively music they’d chosen to showcase how even five minutes of movement a day can “wake up” anyone’s body! Click here to read more about our instructors and again here for weekly class locations and times in six nearby communities.
We couldn’t provide these educational symposiums without the support of our generous sponsors, participation by willing and wonderful speakers and their, as well as other, dedicated organizations who are helping to create the best possible life-management and healthy-living programs for all who live with Parkinson’s.
Ending with the words of online Parkinson’s News Today columnist and fellow Parkinsonian, Sherri Woodbridge, author of Journeying through Parkinson’s Disease:
“…Hope brings purpose back into view. It shuts out the “what-ifs” and turns down the dial of doubt. It disables the feelings of despair, enables you to have a confident expectation of a cure, finds the blessings in the curse, and faith for a brighter future.”
If you’re old enough, you may remember the catchy rhythm in Frank Sinatra’s daughter Nancy’s recording of These Boots Are Made For Walkin’. We’ve used that song in some of our exercise classes to showcase how humming or singing while practicing certain movements can actually improve the effort being made. Music can reach parts of the brain that control how the body responds to rhythm and actually improve not only speech volume, swallowing and breath control, but also unsteadying gait challenges caused by Parkinson’s.
Read more from this interesting article posted on line by Parkinson’s News Today. Then, see if you remember these lyrics and apply them to the fight against Parkinson’s: “These boots are made for walkin’ and that’s just what they’ll do. One of these days, these boots are gonna walk all over YOU.”
Surgeries requiring general anesthesia pose complicated risks for anyone. For people with neurologic disorders such as Parkinson’s, the potential risk of postoperative issues rises. Fortunately – while understandably unsettling to read certain medical information – it is far more important to have as much prior education as possible about the side effects of general anesthesia should surgery and hospitalization afterward become necessary.
We encourage you to read, save and share the important information about undergoing general anesthesia presented in this article from the August/September issue of Brain and Life Magazine. This is a subject that should be discussed with your medical team: general practitioner, surgeon, and neurologist. Click here for the full article
The Merriam-Webster dictionary defines the word marathon as “an endurance contest” and “something characterized by great length or concentrated effort”. Keith Hall and his son Max are both participating in marathons. Keith was diagnosed with Parkinson’s when Max was young and playing Little League baseball. Life kept racing forward with all of its busyness, but the favorite games of “catch” with one another started to slow down. Parkinson’s challenges began requiring a concentrated effort to stay motivated and keep moving, which has become Keith’s ongoing commitment to himself, his family, and hundreds of North Shore and Cape Ann residents with Parkinson’s who attend the classes and programs he and his wife, Linda, started in 2013.
Over the years and never ones to idly sit on the sidelines and allow Keith’s Parkinson’s condition to bring him to a standstill, Keith and Linda entered their own life’s marathon together as a team. As it is for too many others with Parkinson’s, living well and retaining as much independence as possible becomes its own endurance contest. Keith is the first to encourage getting in the fight and make every punch count!
As for Max, he still loves to watch baseball with his dad on television, and is proud to have both of his parents in the stands when he’s coaching young players during practices and games locally and in New Hampshire and Maine. However, on November 3rd, Max will be honoring his dad by temporarily switching sports and running instead in his first New York City Team Fox marathon race to support the Parkinson’s research being done at the Michael J. Fox Foundation.
Please consider supporting Max as he challenges himself with the same spirit his dad shows every day!
Click here to view his web page!