Author: Marilyn

78 PEOPLE AGREE! WHAT A GREAT SEMINAR!

Parkinson’s Fitness and MedRhythms Neurologic Music Therapy collaborated to provide THE  best educational seminar at the Beverly COA on September 7th!

MedRhythms Neurologic Music Therapy CEO/co-founder, Brian Harris, presented such interactive, engaging, eye-opening information, that all 78 of us who attended couldn’t believe how quickly an hour and a half passed by! Everyone remained completely focused on what Brian explained and demonstrated.

Video clips showing the effect of using music rhythms to reach areas of the brain that control speech, body movements, and cognition were fascinating, especially because actual patients were shown interacting with the MedRhythms therapists. Brian and a seminar audience volunteer held everyone’s attention as she participated in a demonstration of how rhythmic beat affects the way our brain “tells” the body how to move.

Our audience included people affected by Parkinson’s, stroke, traumatic brain injury, Multiple Sclerosis, Cerebral Palsy and other forms of neurologic conditions, as well as memory impairment. Brian’s program was a wonderful introduction into a complementary form of neurologic therapy. To witness in the videos the effect of specifically chosen rhythms on movement and gait, and the happy look of satisfaction on the face of a patient who re-gained his ability to once again communicate, was heartening to watch.

There’s a future filled with promise waiting to be explored by many people here in our local communities, and we will do whatever we possibly can to create a way to build programming that includes MedRhythms neurologic music therapies. We invite you to join our efforts!

To read more about MedRhythms, click here.

 

 

BOXING ON A SUNDAY?? TELL US MORE!

We’ve scheduled an Open House in September at the Lynn Fitness Center for people with Parkinson’s who want to learn how boxing is a great way to build stamina, strength, mental focus, balance, and agility.

Our plan is to expand our boxing program from one day to two. One class will continue as usual on Thursday afternoons in Salem, and the second will take place on weekends at the Lynn center to accommodate people unable to attend during the week. Come to the Open House and check out where, what and how this is going to happen and meet the instructors and a few of our Salem class members! Here are the particulars…

Where: Lynn Fitness Center, 161 Eastern Avenue, Lynn
When:  Sunday, September 10, 2017
Time:   11:00 AM to 12:30 PM

For more information or to let us know you’re planning to attend, please click here or phone us at 781-572-5918.

WHAT IF I WANT TO TRAVEL? WON’T IT BE TOO HARD?

A strong piece of advice was shared many times by a Parkinson’s support member during group meetings. One of his favorite trips was to Walt Disney World in Florida with his family…and he rode many of the rides, too!

“DON’T GIVE UP GOING PLACES THINKING THAT YOU CAN’T TRAVEL BECAUSE YOU HAVE PARKINSON’S! 
LEAVE STUBBORN PRIDE BEHIND, LIVE YOUR LIFE AS BEST YOU CAN, AND HAVE SOME FUN WHILE DOING IT!”

The Parkinson’s Disease Foundation recently posted great tips on their web site about transportation and travel. Read more by clicking on the link below, and then start making YOUR plans! The rest of your life is waiting! 

http://www.pdf.org/summer17_transportation?utm_source=newsletter&utm_medium=email&utm_campaign=general

 

MUSIC AND MEDICINE: UNITING CONNECTIONS BETWEEN BRAIN AND BODY

We’re excited about hosting a free educational seminar

in collaboration with MedRhythms Neurologic Therapy, Boston on September 7th!

http://medrhythmstherapy.com/why-we-exist/

When did Neurologic Music Therapy (NMT) first appear?

“NMT was researched and developed by the Academy of Neurologic Music Therapy in Fort Collins, Colorado.
The first certification program of NMT was held in 1999.  Since then, Neurologic Music Therapy has seen rapid growth in healthcare.”

Millions of people lose language, cognitive, and movement abilities each year from neurologic disease or injury – i.e. Parkinson’s, Multiple Sclerosis, Huntington’s, Cerebral Palsy, stroke, traumatic brain injury, autism, etc. MedRhythms collaborates with individuals, medical clinicians, and assisted-living and nursing care staff on an inpatient and/or outpatient basis to restore quality to lives.

Most of us in our area are aware of the first-class neurological services available at Spaulding Rehabilitation Hospital in Charlestown, outside of Boston. “Spaulding Rehabilitation Network was one of the first rehab providers in the country to create a full-time Neurologic Music Therapy (NMT) inpatient program and has now announced a partnership with Boston and Portland, Maine based MedRhythms to offer NMT services on an outpatient basis, making it the most comprehensive program of its kind in the nation.”

It is our hope that MedRhythms will become a recognized collaborative partner with residents, organizations, hospitals, and rehabilitation therapists in our North Shore Area.

Remember…while music therapy lifts spirits through singing, drumming, bell ringing, etc. …it’s also about connecting the brain and body

Click here to see seminar details and how to register for the September 7th event in Beverly. Register by September 1st!

WISDOM FOR THE FOURTH OF JULY AND EVERY DAY…

Searching for meaningful words in celebration of the upcoming Fourth of July, we offer these thoughts and ask, regardless of your political views about the incredible amount of unrest throughout the world, that you take some quiet time away from everything and honestly consider whether you would really want to live anywhere else and still expect to have the freedoms with which we are blessed.

 “Let’s take a break from complaining about America to celebrate America.” – anonymous

Ten Marks of A GOOD CITIZEN – (author unknown)

  1. Well-informed on local and world affairs.
  2. Courteous, unselfish, friendly – gets along well with others – is a good neighbor.
  3. Sincere, dependable, and takes an active part in a religious community of personal choice.
  4. Appreciates what others have done and accepts responsibility for the future betterment of the community.  
  5. Is fair and just in relations with others.
  6. Obeys the laws of the community and nation.
  7. Votes regularly and intelligently at election time – and respects the choices of others.
  8. Is interested in the freedom and welfare of all of the world’s peoples and takes part in securing them.
  9. Is productive and renders a worthwhile service to his fellow man.
  10. Sets a good example to the youth of the community.

TRY “MNEMONICS” TO STRENGTHEN YOUR MEMORY!

Since childhood, many of us have learned to remember things using a phrase or word in sequences or rhythms…an example being learning the letters of the alphabet by singing the “alphabet song”. This is called “mnemonics“. Growing older tests our memory power in so many ways!

Try these simple mnemonic examples to discover how the brain pieces things together. Fill in the blanks to complete the phrases.

  • One, two, _____ my shoe. Three, _____, open the ______.   Five, ______, pick up ______.  Seven, eight _____  them ______. Nine, ten a _____ _____ _____.
  • Red ____ in the ________, sailor take  _______.   Red sky ___  ____, sailor’s _____.
  • Sing:  Are you _______, are you ________, Brother _____?  Brother ____?  Morning ______ are ______. Morning ______ are ringing. Ding, ____, ______.

Did the exercises sound familiar? What words, rhythms, or music have helped you to remember things? Don’t have any? Try making some up of your own!

THE PARKINSON BRAIN AND INCONTINENCE…WHERE’S THERE A CONNECTION BETWEEN THE TWO?

Incontinence often becomes a side effect connection to Parkinson’s that creates questions that go unasked and therefore unanswered during medical visits.  Why is that? Embarrassment about discussing “bodily functions”? No seemingly obvious link between the brain and the gastro-urinary system? The link below has excellent information and suggestions.

http://pdcenter.neurology.ucsf.edu/patients-guide/urinary-problems

“The University of California, San Francisco Medical Center has an international reputation for its excellence as a clinical and research facility, and the UCSF Department of Neurology is widely recognized as one of the leading neuroscience centers in the United States.

The Parkinson’s Disease Clinic and Research Center at the University of California, San Francisco Department of Neurology has been a National Parkinson’s Foundation Center of Excellence since 1992.”

DO I TELL THE BOSS ABOUT MY PARKINSON’S DIAGNOSIS?

A growing number of younger people are being diagnosed with early-onset Parkinson’s. Many men and women are still actively working and wondering about having “the talk” with an employer about the future. Advice found in the web site link below is particularly important, as is educating oneself about workplace rights under the American with Disabilities Act:

“Give yourself time to absorb the news, and take some time to educate yourself about Parkinson’s disease and how it will progress over time. …you don’t want to talk to your boss about Parkinson’s if you yourself know very little about the disorder and can’t answer questions.” 

“The Americans with Disabilities Act (ADA; www.ada.gov), which is enforced by the Equal Employment Opportunity Commission, prohibits workplace discrimination due to disability as long as you can demonstrate that you can perform the job in question when reasonable adjustments are made to accommodate you.” 

Click on the link to read excellent “talking points” for holding open, honest discussion with an employer, human resources staff, and fellow employees.

https://www.verywell.com/parkinsons-disease-work-concerns-2612115?utm_term=parkinsons+latest+news&utm_content=p4-main-1-title&utm_medium=sem-sub&utm_source=msn_s&utm_campaign=adid-a6f6bdc6-6c5d-4114-92c5-6582778901ca-0-ab_msb_ocode-29655&ad=semD&an=msn_s&am=broad&q=parkinsons+latest+news&o=29655&qsrc=998&l=sem&askid=a6f6bdc6-6c5d-4114-92c5-6582778901ca-0-ab_msb

Young (“early”) Onset Parkinson’s support group information is available by contacting the American Parkinson Disease Association Massachusetts Chapter’s Information & Referral Service located in Boston (http://apdama.org/wcms/about-us/information-referral-center/)

FACTS YOU MAY NOT KNOW ABOUT EXERCISES…

In the May 8, 2017 online issue of Parkinson’s News Today, a “Facts You May Not Know About Parkinson’s” article includes the following information – interesting reading!

The types of exercise you choose will depend, to some degree, on the severity of your Parkinson’s disease and your overall health. According to the Parkinson’s Disease Clinic and Research Center at the University of California, the exercises should be varied and incorporate changing directions through unplanned movement, cardiovascular exercise, balance, strength training and rhythmical exercises.

Unplanned and Random Movement
The exercises listed require the person to change tempo and direction regularly. These will challenge a person mentally as well as physically as they require concentration to perform.
• Walking, hiking or jogging
• Racket sports such as badminton, table tennis, squash
• Yoga or Tai Chi
• Outdoor cycling
• Dancing
• Aerobic classes
• Marching with swinging arms
• Swimming in different strokes

Planned and Repeated Movement
These exercises are generally repeated movements that require balance. They can be performed while doing something that challenges a person mentally, such as watching a quiz show or the news, throwing and catching balls, singing, or problem-solving.
• Cycling on a static bike
• Weightlifting using light weights
• Swimming laps in the same stroke
• Slow walking on a treadmill

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